Bound To Stay Bound

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 Laughing at my nightmare
 Author: Burcaw, Shane

 Publisher:  Roaring Brook Press (2014)

 Dewey: 617.4
 Classification: Biography
 Physical Description: 250 p.,  21 cm.

 BTSB No: 171980 ISBN: 9781626720077
 Ages: 14-18 Grades: 9-12

 Subjects:
 Burcaw, Shane
 Spinal muscular atrophy
 People with disabilities

Price: $21.46

Summary:
With acerbic wit and a hilarious voice, Shane Burcaw's YA Memoir describes the challenges he faces as a twenty-year-old with muscular atrophy. From awkward handshakes to trying to find a girlfriend and everything in between.

Accelerated Reader Information:
   Interest Level: UG
   Reading Level: 7.00
   Points: 9.0   Quiz: 174827
Reading Counts Information:
   Interest Level: 9-12
   Reading Level: 10.50
   Points: 14.0   Quiz: 68018

Reviews:
   Kirkus Reviews (09/01/14)
   School Library Journal (00/08/14)
   Booklist (11/15/14)

Full Text Reviews:

School Library Journal - 08/01/2014 Gr 10 Up—Burcaw is like any other 21-year-old guy. He loves sports, video games, and bathroom humor; enjoys hanging out with his friends; and has had several girlfriends. The only thing that makes him different is that he has done all of this while in a wheelchair. Burcaw was born with a rare neuromuscular disease known as spinal muscular atrophy (SMA), which hinders his muscles' ability to grow and repair themselves. Instead of growing bigger and stronger with age, he becomes weaker and smaller. As a result of the disease, Burcaw depends on his friends and family when it comes to completing everyday tasks. Throughout, he shares many humorous and touching stories about growing up and living with his disease. These tales leave nothing to the imagination, including descriptions of how he uses the bathroom or has sexual interactions, and the author occasionally employs some graphic language. Burcaw's narrative will resonate with readers, who will laugh along with the funny stories, cringe at the awkward moments, and tear up at the emotionally charged parts. A poignant story that provides a fresh perspective on life.—Annalise Ammer, City of Rochester Public Libraries, NY - Copyright 2014 Publishers Weekly, Library Journal and/or School Library Journal used with permission.

Booklist - 11/15/2014 Burcaw has spent most of his life in a wheelchair with progressively debilitating spinal muscular atrophy, but instead of soberly presenting the ups and downs of a potentially bleak existence, he pens an uplifting, laugh-out-loud memoir that calls out the absurdity of his circumstances, and the joy he finds in the everyday. He shares such universal moments as cops-and-robbers games in preschool, as well as more unique, intimate details of his physical reality, such as the demands of excretion, or how he pursues a healthy young-adult sex life when he is keenly aware that his weakening neck can’t quite hold up his head. Quick-witted Burcaw demonstrates mastery in expressing accessible insights that are well padded in humor, as well as a realistic awareness of his situation, leavened by tongue-in-cheek hyperbole, none of which gives way to off-putting egoism or navel gazing. Burcaw’s smart, gracious, and funny take on his life is an object lesson in positivity, and this eloquently written and moving memoir would easily find a home in both adult and youth collections. - Copyright 2014 Booklist.

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